Use the MeRITA Search ability to have a general overview on aggregated data of a specific rare immune disorders (RID) covered by the ERN RITA. Here, you can satisfy your research questions in order to plan future studies in the field. Filters are based on the Common Data Elements (CDE) that are recommended by European standards for data collection.

Once you have filtered and obtained the preliminary results, a general statistical analysis is offered on the “Statistics” button.

If you can pursue a detailed research project and require non aggregated data, you can contact each Registry’s owner in order to request the export of the data by clicking on the “Ask for access” button. Data shared are fully anonymous at this stage. To obtain more detailed information on the data privacy please contact the Network Coordination detailed below.

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Registry

BIKER registry ESID Eurofever JIA Utrecht Pharmachild REUMA.PT RITA-Ireland

SPIDER

Sex

Select one option Female Male Undeterminated Foetus

Status

Select one option Followed Death Lost to Follow-up Opted out

Icf

Consent contact

Consent reuse

Biobank sample

Orpha code

Hgnc Gene

Hgvs Mutation

Date From

Date To

Age From

Age To

Birth

Onset

Diagnosis

First Contact

Death

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