Use the MeRITA Search ability to have a general overview on aggregated data on specific rare immune disorders (RID) covered by the ERN RITA. Here, you can satisfy your research questions in order to plan future studies in the field. Filters are based on Common Data Elements (CDE) that are recommended by European standards for data collection.

Once you have filtered and obtained the preliminary results, a general statistical analysis is offered on the “Statistics” button (you may visualise the statistics base on your filters bellow).

If you are pursuing a detailed research project and require nonaggregated data, you can contact each registry’s owner in order to request the export of the data by logging in with a verified account and clicking on the “Ask for access” button. Data shared are fully anonymous at this stage. To obtain more detailed information on data privacy please contact the Network Coordination detailed below.

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Registry

AID-Net AIDA PFAPA AIDA Behçet’s AIDA monogenic autoinflammatory AIDA Schnitzler’s AIDA Still AIDA USAID AIDA VEXAS BIKER registry ESID Eurofever FAIRVASC JIA Utrecht Pharmachild POLVAS Reuma.pt RITA-Ireland registry and biobank

SPIDER

Sex

Select one option Female Male Undeterminated Foetus

Status

Select one option Followed Death Lost to Follow-up Opted out

Icf

Consent contact

Consent reuse

Biobank sample

Diagnosis

Hgnc Gene

Hgvs Mutation

Date From

Date To

Age From

Age To

Birth

Onset

Diagnosis

First Contact

Death

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