In order to ask for data access to this registry you need to create a new account or log into an existing one
| Registry details | |
|---|---|
| Name | RITA-Ireland registry and biobank |
| Description | The RKD Registry and Biobank was established in 2012 to address an unmet need in the study of rare kidney disease in Ireland: facilitation of clinical studies when sporadic cases are scattered throughout many hospitals in Ireland. Existing centre-based research facilities had served this need poorly, and a networked collaboration across all the CRFs in the country provided vastly improved potential for the capture of presentations nationally. The majority of recruits have the rare disease ANCA vasculitis. In 2022, the RKD Registry and Biobank was renamed the RITA-Ireland Vasculitis (RIV) Registry and Biobank after joining ERN-RITA. |
| Address | RITA-Ireland Registry & Biobank, Trinity Kidney Centre, TTMI, D08 W9RT, Ireland. |
| Website | https://www.tcd.ie/medicine/thkc/research/rita.php |