Use the MeRITA Search ability to have a general overview on aggregated data of a specific rare immune disorders (RID) covered by the ERN RITA. Here, you can satisfy your research questions in order to plan future studies in the field. Filters are based on the Common Data Elements (CDE) that are recommended by European standards for data collection.
Once you have filtered and obtained the preliminary results, a general statistical analysis is offered on the “Statistics” button.If you can pursue a detailed research project and require non aggregated data, you can contact each Registry’s owner in order to request the export of the data by clicking on the “Ask for access” button. Data shared are fully anonymous at this stage. To obtain more detailed information on the data privacy please contact the Network Coordination detailed below.
|Number of subjects||Registry||Registry details|
|9000/9000 (100%)||Pharmachild||view details|
|9000/31183 (28.86%)||Total MeRITA|